It was my birthday today and Karen came up trumps !

She looked great. She was still on this fantastic bed (£5000 pw hire !) that locks her in position so she can’t move. Every 20 minutes it tilted her along the line of her body from 45 degrees left to 45 degrees right. This was for a number of reasons :-

• To stop her lungs from getting congested.
• To help prevent bed sores.
• To stop her skin from splitting where she has the massive bruising & swelling from the accident.
• And to keep her neck in alignment.

Mum and Dad were up for the weekend staying at a hotel in Sunderland. Mum has done a good clean of the house and got the washing up to date and while putting some of my underwear away, dad came across a Birthday Card that Karen had bought me in her knicker draw. It wasn’t signed, but the words of the card were fantastic.

“To a special husband with love…
In you I have found a wonderful partner and friend to share my life….
and as long as we have love and each other….
I have everything I could ever need and much, much more”
Underneath were 5 hearts. (I always put 5 kisses on my cards to her, and she is the only person who gets 5)

Well, when Dad gave me the card in the visitors room and I had read it, I said “I am gonna cry now” and sure enough I shed a few tears. Dad said “I shed a tear or two when I read it” (trying to make me not feel such a numpty ! . The card was so lovely. Karen couldn’t speak and was heavily sedated, but she was speaking to me through this card.

We followed this up with other cards and Marie brough a birthday cake in and some bubbly and we toasted Karen and the great night she had had.

Karen’s kidneys were failing and she was put on a dialysis machine which helped stem her rising temperature and reduce her swelling. We warned that the next few days she was at risk of infection and that was the next danger to overcome

Dad’s birthday today. Exchange of Cards in the visitors room.

Karen had had another good night and the nurses had experienced more problems with the life support machines than Karen.

Karen’s kidneys had started working again and her swelling was down without the dialysis machine which was great. We were told there would be more news tomorrow when the consultants were back off the Bank Holiday Weekend Break.

Still critical, but stable

Uneventful Day. We were all still talking to Karen. Haven’t got a clue if she could hear us. We were told that kp would be moved to Sunderland today but logistics didn’t allow. They needed a special kind of ambulance, a bed free at Sunderland ICU, a free doctor and nurse to go with her etc etc….

Spoke to Frank who was very pleased she was still here. I asked for odds again. 50/50. We were happy with that. We had been down to 20% chance of survival before the weekend. She’s a fighter.

By this stage, we knew the Green Room inside out. It had an adjacent toilet, sink and shower, which we all made use of (even the shower). We had all sussed that if you sat in a certain seat in the Green Room, you can see through the knee level air vent to the shower room and if anyone was on the loo, you can see their legs while they sat on the loo.

I think I was last to realise it and always wondered why Adele went to a different loo. Another good reason to use another loo was the thickness of the door to the shower room. PAPER THIN. Fart and everyone knew it !

We had sussed the coffee machine out in there also. It served 2 different soups, coffee, hot chocolate and tea. But we all knew the only thing that was drinkable was the tea. All this advice we would pass on to other families who entered OUR green room.

Another tip we learned…………….Sometimes, we would have that many drinks of tea, the machine would run out of water to heat up, but we had a solution. Get the plastic flowers out of the vase. Take the vase into the shower room. Stand UNDER the shower with the vase, and fill the vase up with water and then fill the drinks machine up. It couldn’t be done in the little sink, because of the angles and the size of the vase.

All these tips we passed on to other families. There was a great camaraderie amongst the families in the Green Room. We got on very well with the Lews family. The husband, daughter (20) and 2 sons (18,19) were there for Karen Lews who was the same age as Karen. She was also a big Donny Osmond fan and was ALSO going to the same concert kp was due to go to in September. The daughter brought in a photo of Donny so that we could put it up near our Karen, which was nice.

We also kept their lads supplied with fags as they were a bit strapped for cash.

Sadly, she died about a week after being admitted to the ICU.

Despite all the odds, our Karen was still managing to win the battles she was facing. Every day, we felt there was more chance she would survive.

Karen had a big problem with her temperature today. Everyday she was under this inflatable blanket, that had very cold air pumped into it. It did a great job of bringing her temperature down. She peaked at 39′C today. Not too bad for Karen.

Karen had had an eye swab (and some other swabs) taken the other day. The results were back today (E.Coli in her eyes, and enterococcus in her lungs…………

The consultants wanted to rule out Karen’s neck and spine for damage, but the only way they could really do this is by waking her up …..

At 6pm, they started to lighten her sedation. We weren’t allowed in the ICU at this point for some reason. It soon became clear that Karen wasn’t reacting well to being taken off the sedation drugs. She was getting very agitated apparently. A nurse came to see me in the green room and asked if I would come through and try and calm her down, which I duly did. Miraculously, hearing my voice did calm her down substantially, but not enough to keep her unsedated, so she was re-sedated.

Off sedation for 3 minutes. Increased Heart Rate. Increased Blood Pressure. Increased Respiratory Rate. Agitated. Had had a bolus of morphine [a burst]

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They thought the stress of being trapped and unable to move on this rotational bed got her agitated. It felt right. The good news was they were able to do some neurological tests whilst she was under light sedation.

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I didn’t do a blog for this day, but here is what the hospital notes say happened……….

The way forward as recorded by an ICU consultant at 9.50am……………

Hip / Pevlis fixing to be done at Sunderland but can’t go there until other issues sorted. Needs halo (to ask Mr BXXXXX) then tracheostomy and closure of abdomen then wake up and assess c-spine and neurology and then transfer to sunderland

At 4pm, Karen was moved off the rotational bed, which meant for the first time since Day 2 she was not being held rigidly in place. Were she to be taken off the sedation, she wouldn’t feel as closed in and hopefully wouldn’t get agitated.

Patient shifted (log rolled) on to new bed. Hip appeared stable. Grade 2 pressure sores over both xx region with bruising. Grade 1 pressure sores over the right calf and thigh. Grade 1 pressure left calf

At 7pm, kp’s temperature was in check, so the cooling blanked was removed.

The main orthopod came to examine Karen today. He concluded………

Hip appears possibly dislocated from AP Pelvis. To discuss with (Sunderland orthopod) over weekend.

Today, she also had an ultrasound of her kidneys, but it was tricky to do with the external meccano set protruding from her front and back…….

Kidney Ultrasound – sub-optimal examination due to technical reasons such as overlying dressing and external fixation frame. Both kidneys appear structurally normal, but keep in mind suboptimum examination

Every day, the hospital prepares a summary sheet of her current situation………..Here is today’s. Until I saw this, I was completely unaware that Karen had pneumonia at this time as were the rest of the family. We were aware of the MRSA she had in her head wound though. I have highlighted some key things………..

The physios were attending daily by this stage. You might think what physio can she do while she is sedated, but basically the physio ran through a set of exercises that the family could do to stop Karen’s arms and hands bending in on themselves………

Physio-continue daily arm stretches (15 second hold x 5 neutral). Unable to do passive movements for knees, hips or upper limbs

Again, didn’t blog today, but hospital records show that today was the day the Tracheostomy was performed. This meant that Karen could have her mouth treated at last. Her tongue was scarred and her mouth was in an awful state. We would put this stuff called Nystatin in on a regular basis and swab and clean out her mouth with sponges on sticks.

This was very therapeutic for us as relatives as it really felt like we were caring for Karen. We had always mopped her brow with cold water and been kissing her all the time, but this really felt like we were doing some good.

No blog done today. Hospital records show….
At 3am, one of the doctors recorded….

Chest infection – enterococcus, unstable trachy tube, plan to do chest x-ray and may wake up today

One of the most exciting times for us as a family was when they woke Karen up. For over 11 days, we had talked and talked and talked to Karen about every silly little thing that would come in to our mind. We had all told her how much we loved her, how strong her fight would have to be, what the weather outside was, any family news, what the nurses were up to. The nurses often sniggered at us as we talked crap to Karen, because it was quite comical at some of the stuff we came out with. I recall one particular conversation I had with her………..and yes, you DO get this desperate for conversation………..

“Well, this bed your on is great Karen. It’s costing 5,000 quid a week to hire. It’s amazing. You’re clamped in so you can’t move at all. There is some work gone in to it’s design. I wonder how much it would be to buy. Heh, what would happen if there was a power cut. Do you think you’d be stuck……………..Etc etc…..”

Absolute tosh !

But, today there were lightening the sedation. They weren’t bringing her fully round, but she would be more likely able to hear us. Exciting times. I can’t recall the timings, but later in the day, we were able to shout things at Karen and we knew she was awake because she would respond.

dp:- Karen, Squeeze your right hand.

Karen squeezed my hand.

dp (with the BIGGEST grin on my face) :- Jane, Jane, come over here, she’s squeezed my hand

dp:- Karen, Squeeze my hand again.

Jane (nearly crying with joy) :- Oh, f+cking hell, that’s amazing. Well done Mrs P. You’re doing brilliantly.

Words can’t really describe how good it feels to get something back from the person you have been caring for. Another trick, we’d get her to do is…

dp:- Purse your lips love.

And she would – Fan-bloody-tastic !

Later on that day, an Ear, Nose and Throat chappy came and sorted the trachy problem out…..

Trachy repositioned, was stable but orginally placed upside down hence instability. Turned on correct orientation, held in position by sutures.

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Arms and legs are very flaccid, apparently she does squeeze hands with family but I can detect no active movement. Sesation difficult to assess because of effects of sedation. Note CT of neck shows normal, but have we excluded any other spinal fractures. XRay spine tomorrow, continue with log rolling

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More progress today………….

“05:00am – Blinks to command”

And the oxygen levels were reduced down to 35%…

We had another meeting with the consultant for another update on how well she was doing…………..

“Discussed with family, explained….

1- Awaiting plan for pelvis, apparently surgeons from Sunderland due to assess on Wednesday
2-Neurology uncertain, awaiting sedation to wear off
3-probably ICU neuropathy
4-damage from accident

Keen to know chances of survival. Explained unable to give a figure. Doing better than on admission but risks of
1. Pelvic Surgery
2. Further infections therefore may not survive this”

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And her latest trick at 6pm………………

Karen was still under light sedation, so was sometimes with us and sometimes not. She had less machines around her now, probably only about 4 or 5, compared to about 10 initially.

Most of us could read the machines now, and we could tell when she was awake enough to respond to us, by the main machine. If I recall correctly, it was when her blood pressure increased above 90, it meant she was waking up, not fully, but enough to respond.

As soon as she was awake, she was tortured.

dp:- Karen, stick your tongue out, blink, squeeze my hand………etc etc..

Well, I wasn’t that bad, but we did ask her to do quite a few tricks.

One of the main ICU anaesthetists came to give kp a neuro assessment. Here is what she put….

Comfortable therefore decreased morphine, bartley neuro exam (graphic), flaccid paralysis left arm, left leg (0/5, 0/5), good movement (within limits of immobilisation) in right arm/leg, obeys commands though power 3/5. Upper Motor Neuron lesians affecting brain, high cord, but hard to tell for certain because cannot obey commands to “follow finger”. May have divergent squint right eye, unable to assess sensation

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At this stage, they weren’t sure what was causing the problems with Karen’s left side. An initial CT scan of the brain had showed no problems, yet from day one, she had all the symptoms of a stroke. Here is one of the consultant’s take on it……

CT head tomorrow 08:30, hard collar and head immobilisation to resume till definitive cause for neuro defecit. Probably intracerebral but COULD be high cervical cord. MRI impossible because of exfix – husband aware

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At 6am……………

Appears alert at times but intermittent. – eyes appear to be focussing and following my voice and will intermittently blink on command

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But, by 4pm…………….

Becoming more reponsive over day. No movement on left side. Moving right arm and small movements of right leg. Trying to communicate words, able to nod and shake head

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This was an incredibly frustrating time for Karen and family. Karen was desperately trying to say things, and we couldn’t understand most of what she mouthed. The nurses gave us a “stroke board”

It had a set of symbols on with meanings like “I feel hot”, “I feel cold”, “I am in pain”, “I am upset”, “I am happy”, “I am hungry” etc etc…

We tried hard to get Karen to use this, but being unable to move her arms or hands enough to use it, we had to point to them and say (one by one),

dp:- “Are you cold ?” (pointing to the “I am cold” picture)

etc etc…

Sometimes this worked. It was heartbreaking when she pointed to “I am upset”, heartbreaking.

On the reverse side of all these pictures were the letters A to Z. The idea being Karen could spell out what she wanted to say………………This was equally as frustrating for the same reasons, she didn’t have the strength to point to a letter, so what we would do is lift her right hand up, she would stretch her finger out, and we would (one by one) take her finger to each different letter and say………..

dp:- Is it this one ?

We realized it would be quicker to point at each letter and wait for a nod or a blink. But even then it was PAINFULLY slow, and because it took so long for even one letter, Karen lost her concentration and ended up spelling things like

TOGYZA

?!?!?!

As her strength increased over the next day or so, we tried to get her to write what she meant………… Being so weak, she couldn’t move her hand sideways as she wrote, so she would end up writing a whole word in the space of one letter

I saved all the writing she did………Here are some of the ones which at least we have a chance of decoding……

Any ideas ?

I think these were done whilst I wasn’t there when she was trying to communicate with the nurses. Incidentally, they weren’t all neatly arranged like this, I have brought them all together from a full sheet of A4…..

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Here’s a couple more we struggled with and an idea I had of putting the sets of letters on 3 rows, so she could point to the row her letter was on and then I could go along that row. Cracking idea, but it didn’t work – not enough attention span to find the letter…..

Have a go at this one………………..

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Here is her second go at writing this…………….

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I worked this out – it is to do with Pile Cream of all things !

Karen was now off all sedation. Her pain was in check and everyday when she was awake, we struggled on with our attempts at communicating with her.

Today, she was due to have a CT scan of the brain to see why she has a left-sided weakness. The results were as follows ….

“1.50pm – CT of head this morning shows right MCA infarction (death of tissues due to blood supply interruption). Discussed with husband and family members. Explained to them that CT of head had shown infarction and will be reviewed by Stroke Consultant. Husband wanted to know about the prognosis from stroke. Explained that Stroke Consultant would answer.”

So, why wasn’t this seen on the initial CT scan……..Here are the consultant’s views on this………….

“She has certainly had a right MCA territory infarction. Signs noted on admission sugggest this was present from the start although initial CT reported normal. Now (off all sedation), moves eyes and lips in response to speech, noted left facial weakness and flaccid left arm/leg. mechanism of stroke unclear but I think right carotid dissection (traumatic) is quite likely. Could attempt carotid doppler in a week or so but it won’t affect immediate management.”

At about 10pm on the night, problems started to develop with Karen’s arterial line in her left arm. Karen is a bugger to get needles into and they spent a good while (2 hours+) trying to get another one in. In the end, they ended up inserting it in her left foot, securing it with sutures.

What a cracking day. Karen is on a normal bed. Her face swelling is greatly reduced. She’s been opening her eyes a lot (when she is not tired). For the past few days, Karen has been trying to tell us things. She no longer has the mouth ventilation (she is on tracheostomy ventilation) so her lips are free to move. The stroke means only one side of her mouth moves, but she is desperately trying to tell us things but its very hard to work out what she is trying to say as no air comes out of her mouth, so its a major lip-reading challenge.

You can tell she is frustrated because she does a tutting motion.

Marie got upset one time in front of Karen (something we all tried not to do) because she was getting so upset for Karen and her frustration. I did the same once, but managed to avert her eyes (as someone else was there to distract her). These were the worst times in some ways. At least when she was sedated, she wasn’t getting upset and frustrated.

We have a stroke chart with letters but she is too weak to point to the letters, and the hand that she has movement in is the one on the end of her broken arm.

So, we would point to the letters and get her to stick her tongue out when we were on the right letter. This takes forever and tires Karen out. We never got past letter 3 of a word, and we would end up spelling something like “GEZ”. We never managed to work out what she wanted from this chart.

BUT………..TODAY IS DIFFERENT !!!

Karen was doing very well on the ventilator (down to 35% oxygen mix), so we asked if they could put the speech gadget on and deflate the cuff that stops air passing past the vocal chords. They had to empty her stomach first as we couldn’t risk her vomiting and breathing down the vomit. They deflated the cuff, and it took a while for Karen to get used to the sensation of air passing over her vocal chords. But then bit by bit we could hear VERY faint words. I was on the wrong side of the bed and couldn’t run quick around to put my ear right up to her mouth.

“Where is the toilet?” (very very quiet)

I explained she didn’t need to worry about that. There are tubes and things taking care of that !

I didn’t realise that they had still to fit another gadget to the ventilator to make more air pass over her vocal chords.

When they fitted that, Karen could talk and WOW – it was marvellous. I can’t recall what else she said, I was too elated.

I think I asked if she was in pain, is she fed up and some other dumb questions.

It was just great to hear that Karen was still Karen. There was a lot of visitor changing in 10 minutes so everyone could hear her speak.

She soon got tired and fell asleep and they inflated the cuff and the voice stopped.

A Cracking day. From the “crying bins” outside the hospital where we would bawl like babies in such sadness thinking kp wouldn’t live through the night to Karen in a normal bed, colour in her cheeks (something she never had when she was well !) to Karen conscious and speaking – words can’t describe the feeling of elation.

The nurses can’t leave Karen with the cuff deflated (so she can speak) for too long, as she has to make more of an effort to breath and it really tires her out. So for today, there was no voice. Records show…..

“6.30am -Trying to comm by lip reading and squeezing hands”

Karen was taken for a scan today to check her carotid artery for furring. A standard procedure after someone has had a stroke. Seems to be all clear

Mum and Dad were up visiting. For most of their visit she was asleep. The scan really took it out of her, but she did reward them with some awake time. What a shame the voice gadget wasn’t fitted. She had a high temperature today (39.7) and was very hot. We were constantly wiping her head, and when mum and dad went in I told them to continue that. Mum did it for a bit, then Dad. Dad said “I bet you prefer my TLC over Mums”. Karen smiled and nodded much to dad’s amusement.

Mum said to Karen that she was miffed that Karen would be getting her hip done before hers. (Mum is due a hip op). Karen smiled at this which pleased me and mum no end.

Other good news of the day was that Karen moved her left hand ever so slightly (the side affected by the stroke). I didn’t see it at first, it was the nurse (Gerry) who spotted it and let me know and then she did it again. I also noticed her mouth seems to be working on both sides a bit better. So there is big hope here !!!

We were told that on Sunday (assuming free ICU beds at Sunderland), kp would be moved to Sunderland and that the big pelvic op would take place on Tuesday. She would return to Gateshead on Wednesday.

Critical Op which we will all be pleased to have behind us !

kp is on a roll !!!!

She was on the bellows overnight for a while. This is a halfway house between full ventilation and breathing for herself. It is more taxing for Karen, but makes her lungs stronger…….But…..

Was tiring at 5am, put back on ventilation. Plan to return to bellows. Much more alert/orientated today. Very appropriate responses but left neglect/paresis remains.

She had a bloody awful night “projectile vomiting” as kp herself described it.

But a cracking day today. She had the voice thing fitted to her ventilator and gave the doctor (John) the “1000 question” treatment about her awful night. Poor chap probably wants to get her sedated asap.

Here’s his record of it……

But, he went on to say………

Awake and communicating well with the cuff down but keeps asking the same questions repeatedly

She has been smiling today a lot at various funny situations.

There is a lovely indian nurse called Susilla, and Karen keeps calling her over using the name “Basillus”. When she was first told the name Susilla, she bluntly said “who thinks up these names ?”. We chuckled. Susilla smiled.

On the negative side she is also very confused and is convinced she went out with one of the nurses (Alan) for a meal the night before. Alan says he didn’t go out with her. I believe him. But this is quite normal apparently to have vivid dreams when on morphine.

kp is off all pain relief at the moment but the memories of the dreams linger.

I have been prodding lots of karen’s left side today. Something to do

She said she could feel it, but then I said “can you feel this ?” (and I wasn’t prodding) and she said “yes”. I said “I wasn’t prodding then. You cheat ! ”. She immediately replied “You’re a cheat too then”. I laughed, kp did a big grin.

I have a voice recording of Karen thanking everyone for their texts. When my friend Nigel can get it on the internet, I will post the link in the blog and you can hear kp.

Tomorrow should be the move to Sunderland. 2pm is the scheduled time, could be earlier or later though.

Pelvic Op on Tuesday.

Roll on days like today !

Had a phone call while I was walking the dogs. Karen is being moved this morning to Sunderland. She should be there by now. Being sedated for the journey.

Here is the letter that accompanied her to Sunderland…………..

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Another storming day for Karen !! She is on fire !!

Let’s get the negatives out of the way first.

I felt that the stroke was showing itself more than previous days. Her left eye, mouth, arm and legs aren’t as responsive as previous days, but I am not overly worried about this as I am sure these things come in fits and starts.

She had a temperature after the journey, but I am pleased to report that after much wiping of kp’s head, arm and legs and the cooling blanket, this was normal by the time we left. The nurse advised us if it didn’t drop, there was a possibility the operation would go ahead as planned. Hopefully it will stay down.

kp got a little distressed and wanted to tell us something but waited until there were no nursing staff within earshot. She relayed the fact she had overheard a nurse at Gateshead saying how distraught I was that kp may not pull through this (to another nurse). When kp first went in, there was big doubt she would make it through the first few days, and indeed we did nearly lose her on the first night. And I and the family were distraught at times. But since then, with her boundless determination and strength, the situation is very different and although I occasionally have a cry, I am not feeling as desperate as the first few days. Karen is such a carer, and overhearing such a conversation would play more on her mind than the medical predicament she finds herself in. So we reassured her that this was old news and we were so proud of how far she has come. She was reassured by this. She knew the nurses meant well by saying what they said, but they shouldn’t have said it in her presence.

Positives

She had a good night sleep the previous night, no vomiting !

She has been off the main ventilator all day, and on the bellows which is a kind of halfway house between full ventilation and free breathing. And to our great delight, she has had the voice gadget fitted all day !!

We have been howling with laughter at some of the things she has come out with. She has been doing the biggest of smiles in return.

Jane Burns (Karen’s best friend and who has been a great rock to me) was next to her bedside and Karen was asking why Tony (Jane’s husband) wasn’t here today. She wanted to see him tomorrow and when she sees him she is going to “tweak his noise” (Karen showed Jane how she was going to tweak his nose). Given kp couldn’t have lifted her right arm a week ago, we were over the moon that she was doing it and with kp humour intact !

Jane also mentioned to Karen that I was missing sexual services from Karen so she had better get well in time for my twice yearly servicing in July otherwise we would have to get a phillipino woman in to help out ( a private joke ), to which Karen replied “Yes, because they are cheap [to hire] aren’t they”. We laughed, kp did the biggest of grins.

That’s about it for the day, but I want to record one other thing to tell Karen about when she is better. Karen didn’t spot this today, but she will find it funny in a month or so’s time.

Karen has been quite demanding on the staff today (no surprise there). The nurse was struggling to get blood out of Karen’s line in her right arm. Karen (of course) does this for a living, being a venapuncturist for the Blood Service. So, Karen said something like

kp :- “You should try holding my arm tighter” (or something like that) and then added
kp :- “I do this for a living”

To which the nurse (totally unaware that kp is a venapuncturist) replied :-
“What, you’re professionally a temperamental person”

Karen didn’t spot what she said. I felt it best not to mention it to Karen or the nurse.

Something for another time…..

Another corker of the day. Try stopping this woman !

Negatives
None of significance.

She didn’t have the best night sleep in the world. She didn’t get to sleep until 2am according to the nurse and according to kp, she was kept awake because I took her to Manchester in the middle of the night apparently, and the place we stayed had “what are those furry creatures called?” (rats) that went .

We were sniggering. She has dreams that she feels are reality. It’s a little disconcerting, but at the same time, we find humour in every situation. I think I understand why paramedics and fireman have such good senses of humour. They come across some dreadful situations but use humour as an escape. We feel we are doing the same.

I remember one time about a week ago, we were creased up with laughter in the visitors room at Gateshead and the nurse came out to say we could go back in to see Karen (a little bemused by our laughter). Jane said “Wouldn’t we feel pratts, if she had come out to say ‘sorry, karen has passed away’”. We laughed more. This sounds awful, but its our way of dealing with it. And it works – strangely !

Other negatives
Bit of a temperature today 38.7C. But as quick as they come, they go. Bloods sent for analysis to check there is no infection. Apparently, it depends where the infection is if they will operate or not. If it is a chest infection (well away from the pelvic bone), then this may not be as bad (from an operation perspective) as an infection in her stomach. A stomach infection that spreads to the pelvis during the operation would be very bad.

Incidentally, while I remember, kp’s stomach is still not fixed. I think they have stitched up the skin, but left the muscles unstitched allowing free-er movement of the lungs. Or they have stitched up the muscles and not the skin. One of the Two. What do I know – there’s somat still to do in the stomach region !

Postives
Loads of positives today from the relatives perspective. kp has been on the voice gadget ALL DAY ! From the moment I went in, to the moment I left. I went in about 1115am and she was fast asleep. She can’t snore (like usual) and instead blows bubble out of her mouth. God, she will kill me for putting this on the internet, but hey, it was funny as hell and who gives a sh+t, if she kills me it means she made it through and I won’t mind at all. And for about 45 mins, I just stoo there wiping her brow with a dampened bandage. I loved every minute of it, and stayed until she woke up. She later told me she had been awake for a while but just liked the mopping of the brow. She’s no fool !

She was very tired for the first few hours and didn’t open her eyes, but did talk a lot. But it was lazy talk.

A real cracking day of humour. The highlight of which was when Tony Burns came in. Karen had asked for Tony to come into see her. She was so keen for this to happen, the nurses said it would be ok. Tony is the husband of Jane (my rock). Karen had Tony and Jane and me in stitches. She was doing all her usual banter. She pulled Tony’s nose off his face. Scalded him for not bringing in fresh pineapple, and told him how pleased she was that he hadn’t come in a few minutes earlier when her bum was bare and the nurses were turning her over.

She is a complete star ! And she thrived on Tony’s company. Thanks Tony !

Need to eat now. It’s 9.27pm. So I’ll finish with the latest news

The operation tomorrow is unlikely to go ahead. I think the consulants underestimated the work involved to fix kp’s pelvis and hips. They called for some additional 3d scans of kp’s pelvis and hip and apparently tomorrow morning they are going to have a meeting to discuss how to fix her.

There is a slim chance that they may operate tomorrow afternoon. But I got the impression it was more likely to happen on Wednesday. I will keep you posted.

One final thing while I remember. Karen spontaneously started telling a nurse about what she remembered about the accident.

She said she remembered telling an unconscious Kevin to hang in there because he had two wonderful sons who would need him (I don’t know if Kevin has 2 sons or if this was a dream).

She also remembered Angela was groaning in pain.

From what I have heard, Kevin (the driver) is doing very well. He has a broken collarbone and some broken ribs and although sore is well on the way to recovery.

Angela is doing very well also. She has had her pelvis operation and it went very well and she is chirpy. Hope thats right. But thats what I have been told.

If we have another day like tomorrow, I will be over the moon.

I will be very relieved when the pevlis operation day is over. Apparently, the operation will last the best part of 8 hours.

Keep all your fingers crossed tomorrow (in case its tomorrow) and definately on Wednesday !

dp

I am going to sound like a parrot (no jokes about polly parrot plz), but a truly excellent day.

Karen HAD the op today !!!! She went in at 9.30am and came out 5hours 15 mins later. This operation was the biggest hurdle Karen will face that we know of and it is one we were told she had a 50/50 chance of surviving. She took those odds, spat at them and kicked them out of the hospital window.

Having now read the surgeon’s report, there was only really one thing I (as a layman) could understand and that was this….

Click on photo to enlarge
So, it sounds like Karen’s insides were all to pot. Anyway, she stormed it

Go Karen Go (dp waving like a girly cheerleader).

I am so proud of her and told her.

The day wasn’t without hitches however. Are they ever ? The remainder of this weblog is probably not of interest to most readers, but is being recorded so I don’t get a complete rollocking off Karen.

The day started off with me in a field walking the dogs when a phonecall came through from the hospital (8.30am). Bear in mind, we all thought the op was probably tomorrow, but maybe this afternoon.

“Mr Pollard. It is Nurse X from the hospital. Just to let you know that Karen is going to the theatre at 9am”

I was f++king livid at first. All the family wanted to be there for an hour with Karen before she went in for the op, partly for her sake and partly so we could say some meaningful things in case the worse happened. We had all made arrangements to allow us to be there first thing. Adele with the kids, me with the dogs etc etc… There was no way I or the Middlesbrough crowd could get there in 30 mins.

What made it worse is that the nurse said Karen had asked for me to be by her bedside. TOTALLY understandable, but I felt like I was letting her down by not being there. We had specifically told nurses to let us know if there was any change in the plan. 30 mins notice ain’t enough.

I told the nurse how livid I was and that I would be taking this further. I then put the phone down and phoned family to let them know.

Dogs back on lead and me on a fast pace for home, I then phoned the nurse back and insisted I speak to karen on the phone before the op. Her english wasn’t too good, and she was struggling to convey the fact that the phone wouldn’t reach. I told the nurse to tell Karen that I love her very much and I wanted to be there, but I have only just found out etc etc….

I hope she got this message. I will find out over the next few days.

When I got back to the house, Jane (the rock) phoned me and I started getting very upset about the fact that I hadn’t been able to be there for her, comfort her and if this was the last thing she will remember (ie that I wasn’t there for), I will f++king take this to the top or something like that.

Anyway. When I got to the hospital, Karen was in theatre, so I asked to speak to someone senior and a nurse coordinator came out. He took me to the interview room. I took with me the visitors handbook (which I had read a few times). I was very calm + polite and to the point .

The book asked that as part of the relationship between hospital and carers that we provide a single spokesperson to spread the news about the patient so the hospital is not bombarded with phonecalls. Marie is kindly taking care of all family news dissemination.

I explained that we were doing our bit but that the hospital was not meeting their obligation (as stated in their own Intensive Care Unit handbook), namely :-

A-They would have meetings with us to explain the patient’s condition etc when we first arrived (NEVER HAPPENED)
B-They would keep us informed of key information as it unfolded (NEVER HAPPENED).

In fact, we have asked to see the main consultant (Mr Cross) on AT LEAST 2 occasions and he hasn’t seen us yet. NOT ONLY THAT, after the operation I asked to see him again so we could find out what happened in the operation and what Karen’s condition was. We were greeted by “He can’t see you until Thursday”. He may be shit hot at fixing pelvises, but I think that his and the hospital’s communication is ABYSMAL!

Mr Nanu will ring me on my mobile tomorrow to let us know how kp is. Great ! Let’s stew for a night wondering if Karen’s pelvis is fixed or not. The consultants at this hospital really let it down ! The nurses and doctors are great but the consultants seem to have their heads up their arses. (That feels better !).

ok…..

The anaesthetist did come in however and was very nice and of course, he knew bits and bobs but didn’t want to say too much because it wasn’t his area.

Here’s what we gleamed :-

It sounds like Karen WON’T need a further pelvis op.
Her Hip and Phema are unfixed.
She didn’t lose much blood in the op (our big worry)
The surgeons (Mr Cross + Mr Nanu I think) couldn’t do everything they wanted to do because kp’s pelvis showed signs of infection in the outer covering tissue, but they had left it in a situation they are happy with.

Now if you were Karen or me, would you be happy with that half full pot of information ?

Anyway….

Karen had a high temperature from the op. 40.8. She was still sedated, eyes open at times, but she was effectively oblivious to her condition.

The nurse was concerned that if it went higher we may have problems.

I stayed until about 8.15pm when the temperature had dropped to 38.5. Still high, but the paracetamol and the cooling blanket were bringing it under control.

The sedation was reduced and kp (back on full ventilation) was mouthing things. It is getting easier to understand most of the things she says, and I worked out she was hot, and wanted her feet and head cooling. Florence (dp) Nightingale was on hand with cold presses

The complaint made about shitty communication had clearly gotten round and the doctors,nurses couldn’t do enough for us about getting good communication lines in place. The nurses and doctors are superb. They are only let down by the consultants who are obviously too important to talk to relatives. Sorry about the rant, but thats how I feel.

I will be very pleased when Karen gets back to Gateshead (hopefully tomorrow) if she becomes stable.

Not much else to tell.

I would just like to take a quick moment to thank a few people.

Jane for being such a rock (she will kill me for thanking her)
Tony (for loan of Jane)
Marie for being Communication/Catering Manager and being such a dedicated communication channel to the hospital.
Michelle and Adele (sister/niece) for bringing levity/fun/care to this situation.
Eileen for looking after the dogs and
Nigel for sending occasional texts on my behalf

So…..

kp’s biggest obstacle is behind her. She has many more to come :-

Hip
Thema
Stroke
Fat Embelli
Back of Head (needs op)
Nails (she broke one in theatre, she will be very angry about this)
I am sure there are more, but I am knackered and can’t think straight.

Just remembered one extra thing. We found out Angela (also in the crash) was in the next ward up. I visited her and it was great to see Neil and Angela in top form. Angela is braving her shattered pelvis and 9 broken ribs in excellent form. She got upset about karen and would dearly love to see her, but she is bedridden for 6 weeks at least to allow her pelvis to mend (she had her op last week).

Keep up the good work Karen.

I am so proud of you !

dp

PS – thanks to Nigel (my best friend) for hosting Karen’s voice recording of her thanking people for the support

Day 21 !! 3 weeks !

Longest 3 weeks of our lives. But for kp, just a little snooze

I went in a bit earlier than normal today after a very restless sleep to be greeted by a much more upright kp drinking water out of a cup (held by the nurse) through a straw. She said “hello” and was as perky as a perky thing that is at its perkiest of perkiness. She was perky. I haven’t been drinking.

We sat and discussed nights and how bad our haemorroids were.

dp : Are you in any pain love ?
kp: My piles are killing me !
dp: Well if thats your worst pain, that isn’t bad is it ?
kp: I suppose not.

God, I am so gonna get knacked for writing this stuff. Can’t wait !

A food lady came to the door and asked the nurse if Karen could eat anything. Fran asked Karen if she fancied some hot soup or some ice cream ?

Ice Cream it was. She didn’t have much but she enjoyed what she had. She drank a lot of water today and asked me to phone Jane to order some pineapple, strawberries, grapes and kiwi fruit.

kp: Make sure they are washed !!

LOL !

Jane brought up the food supplies and karen drank a whole carton of pineapple juice over the course of the day. Not eaten any of the fruit yet.

We are waiting for kp to be moved back to Gateshead, and the prerequisites for that are that :-

• Karen needs to be stable (she is)
• The consultant needs to confirm the X-rays (taken today) show all is ok.

You can probably guess that neither of the consultants came round.

One may pop round tomorrow morning before surgery tomorrow but the nurse was doubtful. So, with a following wind, she may be at Gateshead tomorrow night. We will all be greatly pleased to be back at Gateshead.

Karen has been very eager to get outside for some fresh air. The hospital is hot ! When she was wheeled to X-Ray in her bed, they passed an open window. Karen had the nurse stop the bed and waft cold air from the window over her.

Poor Fran !!

Negatives

Karen had a cracking morning, but it completely zonked her out, and most of the afternoon was spent sleeping. She is very weak and 1 hour of kp in top form requires so much energy that she hasn’t got and she just falls asleep. Marie + Michelle were not amused. Jane and I had had the best of kp, and then we let Marie and Michelle come in and they had kp blowing “Zzzzzz’s” at them.

Sorry !

I felt exhausted today and I think everyone else was pretty much in the same boat. Its as if the big event (the op) is over, and we can relax a bit. This relaxing allows emotions to surface and a couple of us had a bit of a cry today. One big hurdle over, but many more to go.

Towards the end of the afternoon/early evening, Karen was exhausted and her temperature was on the rise (38.7). Cooling Blanket on and paracetamol given – they normally do the trick.

My only concern is Karen looked very weak when I left her (with Marie) tonight and her heartrate was 130 beats per minute which sets the alarm on the machine off. If she does get a chest infection or pneumonia, it isn’t hard to imagine how tricky this would be to fight with energy so low. But I think we know that if anyone can, kp can.

We have been told to expect peaks and troughs in her recover (good days and bad days). It is the nature of critically ill patients and their recovery apparently. So we are not overly worried about this.

Positives

A cracking positive today. Karen’s left side has very little feeling in it. This is the side they put the needles in and kp never feels a thing. But today, I started massaging her left foot. After about 30 seconds to a minute she commented how nice that felt.

WAHEY !

Very promising.

Overall, a great day. We are all keen to know what the next hurdles are and when we get to Gateshead, we know Frank (the main man (consultant)) will give us a full rundown of the challenges ahead.

Got a phonecall this morning from one of the nurses at Sunderland to say that Mr Cross (consultant) had been round and given kp the ok to be moved to Gateshead. Everything with the operation looked great on x-ray. He will also see me at 2pm today to go through things in more detail

kp is due to be moved before 12pm. We will be very pleased when she is back at Gateshead.

Karen was indeed moved to Gateshead late morning and was knackered. She was tried on the voice box but was too tired and couldn’t speak and apparently was struggling for breath, so she was took off it.

I saw the consultant : a man who commands a lot of bowing and curtseying from fellow colleagues. It felt like going to see the head consultant out of the “Carry On” films. This man had little time to give (not so much through rudeness) but the demands on his time. He is obviously a whizz at what he does and I am grateful for what he did for Karen, but at the same time, I can’t help but think he needs to do more of the “consult”ing side of things. Perhaps thats a general NHS problem.

Anyway….he’s done his bit and here’s what he did :-

He explained that he was just a technician who bolted karens pelvis together with 2 pins (either side) and a back plate. He would have liked to have fitted a bigger back plate, but there was too much infection around the pelvis, probably caused (he thought) from damage to kp’s bladder. He is happy with what he has done however. If he had been able to fit a bigger back plate kp would have been able to sit upright straight away. The smaller back plate means kp will be bedridden for 6-10 weeks (time needed for the pelvis to heal).

I asked about the dislocated hip, broken phema etc… He wanted to bolt that together also but the anaesthetist wouldn’t allow any more time under sedation. This was not a concern to him though because the alignment of the hip and phema were such that they should heal themselves in time. He did say that there was some broken hip bone loose between the pelvis and the hip and that this would need removing at a later stage. He also mentioned that kp would need a hip replacement in the medium term, but that this wasn’t urgent.

He went on to say the pelvis isn’t what would stop kp walking. It was the stroke that would do that. And to add more of a complication, he said it was unfortunate that karen’s hip problems were on the opposite side (rhs) to the stroke (lhs). This kinda makes sense. Karen can move her right leg but this is the hip with the problem. Poor kp

Here are some excerpts from the various medical records….

Karen’s hip was set to be stable, which means she can start some more action-packed physio……

The last sentence of that excerpt hints at a bone fragment around the bladder neck. In trying to deal with this the surgeon had nicked Karen’s bladder with his scalpel.

Done well while with us. During surgery, they found a pelvic collection which has grown e.coli, so they did the least invasive surgery possible. Mr X is pleased with fixation. She may sit up in bed and should probably soon sit out in a chair. During surgery, the bladder was nicked.

Because of this, kp’s bladder needed to be constantly draining.

Communication-wise, kp was still coping with the speaking valve and writing….

We also learned today that Karen Lews who was in the next bed to Karen had died yesterday. We had got close to her family over the past week. She was also a big Donny Osmond fan and was going to the same concert as Karen in September. Very Sad.

Karen was exhausted today. She had not enjoyed the ambulance ride (she wasn’t sedated for it this time) and she was frightened whenever the ambulance went over a bump.

She slept most of the afternoon.

Early evening onwards she started to pick up a little, but still didn’t want the voice box on. She insisted on mouthing things. We weren’t very good at lip-reading so she asked for a pen. Last time she tried this, it was upsetting to see her attempt to write, as it ended up she was writing one letter over the previous 5 letters. Today she was better. We could pick out the occasional words. She wanted an ice lolly. Marie promptly performed her catering duties and went to the shop for an ice lolly (with ice cream in the middle) and kp went about devouring the outer ice lolly coating. She even held the lolly herself once or twice, but when she tried to put it in her mouth she kept hitting the tube coming out of her nose and wondered why she couldn’t hit her mouth

Assistance was promptly given.

She then felt sick, so was given anti-sickness drugs. It stayed down

She did make us laugh again today. When she was eating her ice cream lolly, one of the nurses (Vicky) said “Where’s mine ?”. Karen mouthed “Shop”

LOL !

We all chuckled.

Marie left as her lift had arrived and kp and I spent some time together alone. This time got quite upsetting. kp was still mouthing everything or writing things down. It got to end of visiting (8pm) and the conversation went something like this (kp mouthing) :-

dp: -I have to go now
kp:- I’m coming with you
dp:- You can’t come love.
kp:- I AM coming !

I was getting upset inside at this point, but wasn’t showing it.

dp:- You can’t leave the hospital until you can breath for yourself, eat, drink, and get off the bed yourself.

kp then put her right arm around my shoulder and started lifting herself off the bed. She got about 1 inch off the bed (she is VERY weak) and fell back.

She mouthed something else which I couldn’t understand so then she wrote “I am coming home tonight. Its ok” or something along those lines.

I sniggered. (I wish I hadn’t, and I feel very guilty, but if you saw her you would just know she can’t go anywhere).

dp: I am sorry love but you can’t leave hospital.

She mouthed “Shut Up”.

This banter kept on for a while, until I said “Do you want the voice gadget fitted ?”

She nodded

The nurses deflated the cuff and put the voice thing on.

Karen’s voice then came out and it was unlike I had ever heard from karen. It was soft, sad, mellow, and angelic. I could tell she was upset straight away. The voice had no volume (because of her tiredness), but the words were crisp and easily understood.

kp: I want to come home.

Well that was too much for me and despite me vowing to myself never to cry in front of her in hospital, both eyes welled up instantly and tears rolled down my cheeks.

dp: I want you to come home as well love and one day it will happen, but it won’t be today.
kp: Why not ?
dp: Because you’re not strong enough and you need these machines to breath for you, you need to be able to eat, drink, and it needs to pass through your system and you have to be strong enough to get off the bed.
kp: I am coming home tonight.

The nurse could see we were both upset and she came over and told Karen why she couldn’t leave the hospital tonight. Karen tutted with her eyebrows. Hearing it from a nurse seems to bring the reality of it to Karen.

I stayed until about 9.15pm (1hr 15mins past visiting) with the nurses consent.

She was only on the voice box for about 10 mins. By the time I left, I knew she was VERY unhappy about her predicament, but I think she had accepted that she wasn’t going home with me tonight. I was still very upset but could hold it back until I got out of view.

Karen generally isn’t being the Karen I know. She will smile and wave at nurses as they come and go. She was “over the moon” to see Tony (Jane’s husband) but whenever I enter or leave there is no fuss, no wave of the hand. I KNOW she loves me deeply, but I don’t understand why its me who has to wave frantically to get a little wave of the fingers or its me who has to say “give me a kiss” to get her to purse her lips for a kiss. Or its me who has to say “Do you love me ?” to get her to say “I love you”. How XXXXing selfish am I ! It’s just strange. I know she loves me, but she is not showing her usual love to me and it upsets me.

I know from a phonecall with Marie that Karen (as of 10:45pm) is asleep and settled. So I am pleased about that.

I love you Karen and I know you love me.

See you tomorrow

dp
xxxxx

First of all, apologies for yesterday’s post (part two (end bit)), especially to those who saw the uncensored version with the F word in it ! I was very low, but there is no excuse, so sorry.

I had a good chat with Marie and Jane today, and Marie related her relationship with her son Lee (who had leukaemia) in the time he was very ill in hospital. Marie always used to get picked on by Lee in his most desperate moments while Lee would be fine with other visitors such as Karen. She believes, as do I now, that this is because the love is so great that Lee knew he could vent the frustration at his mam and she wouldn’t desert him. Karen is just doing the same with me and knowing this makes me feel a lot better. It’s not personal – As Margo says in her comment, it shows the deep love between us.

Thanks Marie + Margo !!

Back to the main woman.

A CORKER OF A DAY !

Karen has made a big leap today !!! For 3 hours this morning she was took off the bellows and left with a oxygen mask over her tracheostomy tube. No Problems !!! SO THEN –>

They took her off the oxygen and she spent MOST of the day breathing naturally and there are no plans to put her back on the ventilator. She is breathing TOTALLY for herself !!

Go Karen Go – Go Karen Go ! Yay Rah Rah !! (Girly cheerleader time again)

She ate some ice cream today. She drank some tea (about a teaspoon). Loads of Water. Pineapple Juice. Gin and some Vodka straight (no ice). Well maybe not so much vodka

She was chirpy and had us in stitches again.

Just out of the blue she said to the lovely nurse Dawn (who she keeps calling Claire, Diane and others names)

kp: So are you having to go through “Agenda for Change” (an NHS policy change that affects the blood service).

Marie and I looked at each other instantly gobsmacked.

Another time, a doctor came over. He hadn’t seen karen since she was sedated and he said

Doctor :- You are looking a lot better
kp :- Do I look striking ?

LOL !

The doctor laughed.

When I first went in, Karen was on a machine that automatically exercised her right leg for 10 minutes (moving it up and back).

kp: David, they are torturing me.

She wasn’t happy.

dp: Just another 3 minutes to go love.
kp: No, its been on 10 minutes. Get them to switch it off.

Poor kp.

Another time, the nurses were ganged around Karen and were turning her to treat her leg and head sores. There were 3 female nurses and a male nurse doing it.

kp gave them instructions as to how she wanted to be turned.

kp: I want to get my leg over

The male nurse blushed, the female nurses were laughing. The nurses kept teasing the male nurse throughout the day about it.

So, lots of fun today. kp had lots of smiles throughout the day.

She had a visit from a nurse who specialises in cushioning wounds so they don’t hurt. I can’t remember her title.

Karen’s head was cut at the front and the back in the accident. The front wound was stitched and has totally healed, stitches removed. The back of her head was a bigger problem because they couldn’t do anything ‘cos kp HAS to lie on her back and therefore her head has to lie on the pillow. This was always her biggest annoyance because whatever position she was in, she had to have the back of her head on the pillow. And it hurt.

This nurse came with the appropriate cushions and bandages to alleviate this pain and when we returned her head was bandaged up and she was relieved that there was no more pain from her head. The nurses called Karen “Humpty Dumpty” the rest of the day because that was a very apt description of her head bandaging.

Fantastic Day. kp on top form.

So Proud !

Karen had a visit today from the tissue viability nurse…….She diagrammed kp’s wounds to the back of her head…….

More good news – now kp is off ventilation, there is talk of kp moving to another ward. The doctors debated whether this should be a stroke ward or an orthopedic ward. They decided initially on a orthopedic ward with the pelvis being the biggest injury. She could be moved as early as Sunday, but more likely next week some time. But then, they changed their minds and rightfully so to a neuro-based ward. Here’s the physio’s report….

Another thing referenced in this note is “CPM”. It stands for something Passive Movement. It is basically a machine that works your leg for you, when you aren’t strong enough to do it yourself. It literally moves your leg to a certain angle and back again.

The main hospital stroke consultant came to see Karen today also…………He remarked……

When Karen is moved off critical care, this is a sign that she is no longer critical. And therefore, stable.

Although Karen probably doesn’t appreciate the significance of the ward move, it is a great morale boost to the family and friends.

Very little negative to tell you today.

Karen was convinced she could see “bugs” on the wall. I ended up going to the wall and pointing at various things. It took a while to work out that what she thought were bugs were in fact the black parts of a whiteboard that she could only see side on. I think she was a bit happier when she realised there were no “bugs” in the ward !

Karen had no feeling in her left hand today, but she could feel various prods on her left arm and left foot. I am sure that is enough to work on to gain full feeling in these areas eventually. And with a bit of luck, be able to move her left side, which at the moment she can’t do.

Can’t think of anything else, although I feel sure I have forgot some things.

Cracking Day. Karen is proving to be the Mohammed Ali of fighters and I feel sure tomorrow will bring something else new.

Got a phonecall about 10.30pm last night from KAREN.

kp:- David, I am having a tea party with the nurses. We have had tea and I have eaten half a slice of toast with butter on.

Well, I was overjoyed to hear Karen on the phone talking about tea parties.

And then this morning she rang again.

kp:- David, Can you bring my electric toothbrush and some lovely cotton knickers. And some Jeans.

kp:- I have been on the movement machine for 45 minutes this morning. It hurt. But I did 45 minutes. They said they also might remove my tube.

She meant the trachy tube.

WOW !

On my way kp, see you in less than an hour !

dp

I am running out of superlatives to describe Karen’s progress.

It has been an astonishing day !!!

If someone had told me 1 week ago, that in 1 week’s time, Karen would be going to the hospital coffee shop, nipping outside, she would have her trachy tube removed and would be able to move her left foot, I’d have told them “Look, there’s being positive, but there’s getting a bit ahead of yourself”.

Guess what Karen did today !!!

ALL OF THE ABOVE !!!!!

I arrived at 12pm on the dot and one of the nurses said :-

Nurse :- Haven’t you got something to say to David ?
Karen :- Yes, I am going to the coffee shop today for a “posh” coffee.

Gobsmacked dp !!!

Fantastic.

Sure enough within an hour, Karen was being pushed (in her bed) by 3 nurses to the coffee shop with me, Marie and Adele in tow.

First stop (before the coffee shop) was OUTSIDE !!!! It was a scorcher and VERY bright sunlight. Poor Karen was blinded for a few minutes until we got her in the shade of the entrance awning.

We took a few pictures of Karen, but unfortunately they haven’t come out very well (for various reasons).

Closeup of Karen outside

The trachy tube was still in place at this time, but notice the lack of a ventilator machine. kp was doing all her own breathing.

Jane had taken the day off to go to the Yorkshire Dales. Whenever Jane is off, something miraculous happens. So I phoned her on my mobile and said :-

dp:- Jane, I am outside the hospital. Guess who is outside the hospital with me
Jane:- NO WAY !!!!!! Bloody Hell !

Closeup of Karen talking to Jane Burns on the phone

We then went to the coffee shop where we ordered teas, capuccinos etc. Unfortunately the bed wouldn’t fit through the door of the cafe, but we enjoyed a coffee in the hallway

kp was knackered after this 30 minute expedition, and had some “Zzzzz”s. When she woke up again, the doctor came over and with the help of the nurse removed the trachy tube. kp still has a hole in her neck (it will heal within 10 days) but it is blocked by a big plaster for the moment. It’s weird to watch the plaster rise and fall as karen breaths in and out. What’s disconcerting is when Karen does a big breath, part of the plaster comes off the skin and all the air escapes, but it doesn’t seem to bother her. Apparently, when she did a cough for the first time, she clean blew the plaster off. She has to do little coughs (can you do little coughs ?) or put her hand over the plaster to stop it from coming off which is a struggle, so she tells us when she is coughing so we put our hands over her neck.

Another good bit of news today was Karen did 1 hours 30 minutes of physio. 45 minutes on each leg. They strap this “Passive Movement Machine” to her legs (one by one) and it pulls the knee up and raises the leg. Yesterday 10 minutes was torture, but today 45mins was a breeze.

AND……The physio was testing Karen’s ability to move her left side and she could move the toes and foot on her left side (stroke side). FANTASTIC ! She can’t move her left hand yet however But I feel sure this will come in time.

kp has eaten an ice lolly and a half tub of ice cream today, and drunk some warm tea.

She was absolutely shattered by 6pm. And by 7pm, she was fast asleep. She couldn’t get comfy to sleep on her back, so they tilted her on her side (as much as the doctors would allow) so it was a bit more like a normal sleeping position.

There is talk of her moving to the Orthopedic ward sometime next week.

Can’t wait. Although we will sorely miss the wonderful consultants, doctors and nurses of ICU Gateshead. They are SUPERB ! The quality of care doesn’t waiver from shift to shift at all.

Well done kp.

You make us all very proud !!!

dp

A mixed day today. Laughter and Tears.

Let’s shed the tears first.

Karen got very upset today. She said she had been crying a lot of the night as well. I think she is realising the extent of her predicament.

Every day I read out the comments people have put on this website and as I read last night’s comment, Karen started crying. She is so touched by people’s concern and the overwhelming response she has had both in the form of text messages and blog comments. I don’t think she understands how well thought of she is. And the comments last night (which were all wonderfully encouraging) touched her.

It’s funny, in hindsight, I should have seen the signs. When I offer to read out the texts I have had (over 150), she can only take a few being read out. When I read out the cards from her colleagues at the blood service, I do a few and she says “enough”. She also received a single (large) card from Blood Service colleagues which must have about 30-40 good will messages (20 either page). I could only read the left hand page out before she said “enough”. So, apologies to the colleagues who signed the right hand page – as far as Karen is concerned, you don’t care about her !! That is a joke btw !!!! Karen is only too well aware of how much everyone is rooting for her !!

For the first time today, I read out the previous day’s blog entry that I had written and this upset her also. I won’t be doing that again. Karen, one day, will appreciate the blog, but its too early for her to hear her predicament (even though yesterday’s entry was all positive).

The reading out of the blog prompted the following conversation :-

kp (upset) :- I am 40 and I have had a stroke. That isn’t good is it.
dp :- Actually you’re 42, but I like the way you knocked a couple of years off. Very slick !

So, let’s end the tears. Karen is realising that she is not a well woman, but we tried to reassure how far she has come, and that she is doing remarkably well and everyone is SOOOO proud of her.

On the laughter front. Karen had some GREAT moments today.

One of the auxiliary nurses was reading out the menu for lunch.

Alan (aux.nurse) :- “Would you like Soup or Orange Juice………….Cottage Pie or Vol au Vents”
Now Alan pronounced Vol Au Vents in true english fashion. He pronounced Vents as “he vents his anger”

Karen spotted this straight away and the biggest smirk appeared on her face as Alan carried on reading the desserts out. I was nudging her arm when she smirked confirming the mispronunciation.

kp:- I don’t want the “vol au vents” (copying Alan’s mispronunciation) and I don’t want “Vol au vents” either (kp pronouncing it correctly).

Alan was laughing. kp was laughing holding her belly because she was so amused.

Poor Alan copped it for the rest of the day and kp kept calling him Mr “Vol au Vents”. Alan is the same chap (mentioned in an earlier blog) who was involved in the “getting her leg over” incident.

Karen had a good feed today. They have stopped feeding her intravenously and through her nose so from today, she has to eat real food. She ate a 1/4 of a plate of cottage pie and a couple of tubs of ice cream !!

Another incident that provoked a painful kp belly laugh was when I was describing to Karen how at the other hospital I had seen a 14 year old girl in the waiting room who had jeans that just about covered the hip and her knickers were showing well above the jeans. (Very fashionable apparently). So I showed Karen with my “knickers” what she looked like but pulling my sexy Y-fronts up above my jeans. The Queen was amused !

Another time Karen had us in stitches is when she did an impression of one of the Asian Doctors (Dr Krishna). Apparently he had come over to her bed and said “How are you Karen ?” but with a very asian accent. He pronounced Karen as “Kaaaaaarennnn” ? So Dr Krishna was around her bed with a couple of nurses hovering as well, and she did an impression of how Dr Krishna had woken her up with his “How are you Kaaaaaaarennnnnn ?”

Dr Krishna, the nurses, Karen and family were laughing.

So, in summary, Karen had her down moments today and her up moments. It was quite an exhausting day for karen today and the upset took it out of her. We left her with one of the nose oxygen masks (that you see on Casualty) to keep her oxygen levels up (because they were a little on the low side) (nothing to worry about !).

When I went to leave at 8pm, she was fast asleep. Of course, I had to kiss her good night and she woke up. But only a sleepy awakeness. I said “Good Night, go back to sleep” and her eyelids went heavy again.

Good Night kp

In the next edition of Karen’s blog we should have some interesting reading !!!!

The nurses have suggested I bring in our 3 German Shepherds to see Karen tomorrow. (The meeting with the dogs will take place outside. kp will be wheeled out on her bed). I am sh+tting myself because they will be so excited to see her, they will jump on her bed and open up all her wounds !!!! I will bring them to see her one by one, but still it will be an interesting day tomorrow. Expect there to be some part-eaten nurses and a kp that has more wounds than today.

A day of mixed emotions.

I rang the Intensive Care Unit and asked to speak to Karen. Wanted to tell her I wouldn’t be in until 1pm because I was bringing the dogs. The nurse checked if Karen could speak and came back and explained

Nurse :- “She can’t speak at the moment because she is having physio and anyway she is fast asleep.”

I was laughing to myself at the thought of Karen getting a workout whilst fast asleep.

The day started with tears. I brought the dogs to see Karen, and one by one I got them out of the car and took them to Karen’s bed. First Dog was Cleo. I didn’t want to risk them jumping on kp so I lifted Cleo to kp so she could stroke him.

Immediately she got upset. She had a good stroke and then on with the next dog (Bonnie). I tried lifting her to Karen, but she doesn’t like to be lifted, so I took her on the lead and as soon as she saw Karen she launched herself completely in the air ONTO kp’s bed. Jesus Tonight. kp’s stomach is still not fully stitched up so I nearly laid an egg. Thankfully, I immediately yanked the chain and although all 4 paws touched the bed, they immediately landed back on the ground. Phew ! Bonnie then jumped up with her 2 front paws and let kp have a good stroke.

Elsa was the last and least trouble

Karen was tearful throughout. But I know she was glad she had seen the dogs. I think it must bring home to her what she is missing

More tears followed at about 3pm when kp was ready for visitors again. Marie, Michelle, Jane + myself were round kp’s bed and she was very quiet for quite a long time. She beckoned Michelle to come closer. kp wanted a hug. Very unusual (as those who know kp will be only too well aware). kp hugged Michelle and started crying. Michelle started crying, Marie started crying, Jane started crying and I stood there like a lemon. I must be all out of tears today. kp was upset. She is definately realising the depth of her situation as each day passes. Now I am crying. I feel so sorry for her. She has come through so much, battled so hard – she doesn’t understand how far she has come, and she is just realising how ill she was and is and that she has a long road to travel. She is very frustrated having to lie in bed 24/7. Who can blame her ?

For a lot of the afternoon, she was uncomfortable as she had been positioned on her right hand side. She asks me to get someone to ease her discomfort, which of course I do, even though I know that comfort is hard to find for kp with all her sores etc….

One of the nurses came over and sat down with kp and had a good chat to her. He explained that for the last 3 weeks she had been unconscious and the hard times were experienced by David and the rest of the family. But now it was time for her big struggle. He was down to earth and told her that she was in for 1 helluva fight. She WOULD be uncomfortable. She would hurt each day and she had to fight through it all.

Nurse:- Over the next few weeks and months, you will be calling David every name under the sun.

(No change there then

Nurse:- You will be pushed to your limits by the nurses because they want you to get better. But the biggest thing you will come up against is frustration etc….

It was a cracking spiel the nurse said (he used to work on a stroke rehab ward) and it really let kp and I know that hell is on the way, but that together we can crack it.

So quite a sad day overall, but it did have its highs later in the afternoon.

Jane, Marie and Michelle were by kp’s bedside and were waiting for her to wake up. They were bored so they started singing to kp. We have worked out that we can tell when kp is awake by her heartrate on one of the monitors. When its about 60, she is out for the count and 70+ she is on the way to consciousness, 80+ and she is awake. So it was 60 and the girls were singing songs from the 70′s in the style of pub singers. I wasn’t there but apparently the girls were in stitches at their own performances.

kp’s heartrate rose to 70. So they thought they were getting close. It stayed like that for a while as the girls carried on their renditions, until kp woke up. One of the sisters said

Sister :- We have been singing to you !! Songs from the 70′s.
kp :- I know. But I thought if I kept my eyes shut, you might stop.

Another highlight of the day was when my mum and dad visited.

As soon as she saw mum and dad, she waved at them and the biggest smile came across her face. I bet Karen 5 quid that dad would cry within 10 seconds of her talking. You owe me 5 quid kp !!!!

Mum and Dad could see such a big difference. She was talking, joking and full of the essence of kp. They were thrilled to see such an improvement. It had been 10 days since their last visit.

When they left to go to kp+dp’s house (to do the ironing (thanks Mum !)), Marie and I stayed on. Karen was very quiet. Solemn. Sad. She hardly said a word. She was exhausted. She was fed up.
It’s awful to see her like that. It’s at times like this, I wish the driver of the van could be aware of how much pain he has caused her, Angela and Kevin (and their families and friends). 2 years driving ban ain’t enough !!

Until tomorrow…..

The Day with the “Acorn Antiques” Program

Today started with tears. Not from kp, but me. When kp had the accident, we had lined up a number of events for the year. kp was going to see “Fame” & “Love Shack” at the Sunderland Empire, “Billy Elliott”, “Mary Poppins” and the show we were both REALLY looking forward to “Acorn Antiques” (in London). The London shows were Karen’s birthday present to me, although I was only too well aware that Karen was REALLY looking forward to Acorn Antiques as she loves both Victoria Wood AND Julie Walters. Acorn Antiques is only running for 6 months and we had tickets to the last day (matinee performance).

Obviously the accident prevented from Karen from seeing all of the above. So…after we had got over the first 10 days and kp had pulled through, I started to do something about the tickets. We gave the local tickets “Fame” and “Love Shack” to the Intensive Care Unit at the hospital in thanks for the truly incredible care they have given Karen. Karen can be demanding when she is well, and they have put up with her when she is unwell. They are awesome. (I kept warning Karen that if she didn’t behave they will sedate her until she is off the ward !)

I put the other tickets up on Ebay for sale. The Acorn Antiques landed in the hands of a gentleman called David Lodge who had bought them for his mother (who is caring for her husband who has lung cancer). Karen lost her mother to Lung Cancer, so she was thrilled that the tickets ended up in the hands of people who deserved it, and who would also really appreciate the show.

David said he would give us a show report and sure enough it came through the post today. He had sent the Acorn Antiques programme for Karen and the loveliest of letters. His letter really touched me. He described in detail key moments of the performance, but what really got to me was the email he had sent to the theatre (a copy of which he included with the letter) :-

David’s Email :-
“Dear Sirs I am writing for two reasons

First of all I would like to thank you for the advice I was given in looking at Ebay for tickets I will be coming to the show for the Saturday matinee and cant wait! ! !

Far more importantly I hope that you can help me with something???

I bought the tickets (Stalls 03&4) trom a guy called David Pollard who had ordered them as a birthday present for his wife Karen. Tragically on April 27th, Karen was involved in a serious car accident and nearly died. She has been in Hospital ever since.

David has posted on the web a diary over the last few weeks that makes for heart breaking reading KPSCONDITION.BLOGSPOT.COM. I have never met these people and dont know why I am doing this but feel compelled to act! Do please check out the website!!! I will forward the email I have received from David (as a thank you for the tickets) to show I am not some nutter.

Could you PLEASE PLEASE PLEASE pass this email and information onto Julie WaIters and Victoria Wood because Karen is a huge fan and was so looking forward to seeing the show but will now never get to see it. If that is not possible could you please
get a program signed or some Acorn Antiques memorabilia that I can send to Sunderland General Hospital for Karen to know that if she was not at the theatre in person she will be there in spirit with me.

I can assure you that I have never done anything like this in my entire life and the chances of me getting to hear this story was very remote but it is for some reason that I do not understand – it feels like Gods Will that I should do something about it to make Karen smile!

Your help in this matter I am sure will be greatly appreciated by Karen Pollard and all her family who must be going thru hell. For me I want nothing other than to know that for once I actually did something for no real reason other than caring!!! !

Kindest Regards

DAVID LODGE”

David doesn’t know us. Yet he went out of his way to do something for Karen. David, I am exceedingly grateful. He also added that he knows someone who knows Victoria Wood well and that if the theatre couldn’t help he would try the other route. No worries if nothing comes of the second route David, we are touched by your sentiments beyond words.

Well, reading his letter and email reduced me to tears. Karen’s strength and determination have touched so many people. I take great solace from this. More about this later.

Back to Karen

Karen had real problems sleeping last night. They gave her a sleeping tablet which helped a bit. When I went in at 12pm she had eaten a quarter of her meal (roast chicken, stuffing, the works). The nurses were pleased.

She also looked different. She had had her nose tube removed as it was felt she was eating well enough that she didn’t need to be fed through her nose. Her bowel management system had also been removed and she had undergone 2 hours of physio. On the first day, she could only manage 10 minutes.

We found out today that one of the fantastic consultants on the Intensive Care Unit had asked that she be moved to the Stroke Rehab ward instead of the Orthopedic Ward. It was felt that she would gain more from her being where she would be taxed (from a stroke perspective) with the orthopedic people visiting, than being on the orthopedic ward being visited by the stroke people. This seems right to me.

The move would have happened today had they had a bed spare on the stroke ward. Alas they didn’t. Actually I take that back. The fact she is well enough to move to a normal ward is good enough for us. She couldn’t get better care than where she is at the moment (one nurse to one patient, and fantastic nurses at that).

Maybe tomorrow for Ward 3.

Knowing that kp was moving off ICU, I asked to see one of the consultants for an update on kp’s condition. She was VERY pleased with Karen’s progress and she said the one thing we wanted to hear. Karen is no longer critical and she “would be VERY surprised if Karen DIDN’T pull through this”. For the first time, we have officially heard that the odds are in kp’s favour. I would go further than that and say Karen’s life is no longer in danger and that she now has to concentrate in probably the hardest battle of all – rehabilitation.

This is a big weight off the family’s minds. We have kind of felt this anyway for the last few days, but to hear it officially from the same lady who gave Karen a 5% chance of pulling through the first few days carries a great deal of weight. Thanks CONSULTANT (name withheld at request of hospital) – for your honesty and frankness. We appreciated it when we were told the bad odds and we definately appreciate it now !!!

We then had a bit of sadness. The consultant (in the presence of Karen) was trying to get across to Karen how far she has come and she told Karen that we nearly lost her a couple of times in the first few days. Karen broke down at hearing this. Although I have told her similar things before (to illustrate how far she had come), she had never heard this from the professionals. Karen REALLY doesn’t understand how good a fight she has put up and how wonderful she is. The consultant was great and she comforted Karen. Marie and I added our additional support.

This played on Karen’s mind for the rest of the day, but I will return to this later.

I grabbed the consultant privately to confirm that Karen was out of danger. I didn’t want to ask this in front of Karen (perhaps this was wrong), but I was chuffed to hear the news that I mentioned earlier.

After the consultant left, one of the paramedics (who helped get Karen out of the car), stopped by to see how Karen was. This is the first time Karen had met Jayne since the accident and the first time Jayne had seen Karen since she was out of danger. We had a few more tears as Jayne related some of the facts of the accident to Karen. She told Karen how brave she was and how she had been cursing the firemen, because they couldn’t decide the best way to cut her out.

Karen :- “Why is it taking so long to get me out of here. I bet there is a man behind this decision”

When all of these visitors had gone, I started reading out last night’s blog comments (and text messages) to Karen, leaving the “Acorn Antiques” things till the end. Karen loves hearing the messages of support.

dp:- Now, I have something special to show you.

I revealed the “Acorn Antiques” program and explained its origin.

I then read out the letter (detailing the Acorn Antiques show) and email to Karen. She was VERY moved by it and got very upset. I think she couldn’t believe that someone would do this for her. This constantly amazes me. I read out all the texts, blog comments etc…. And she just can’t believe that she is so well thought of. I keep thinking back to the thought that she obviously doesn’t understand how far she has come and how much so many people care about her.

Thanks David again for this. You have definately helped bring home how much feeling there is out there for Karen.

We have had many laughs today. Karen enjoyed seeing her brother-in-law David Gall today. And she had a good crack with him about “boring Dave”.

Tomorrow will probably see her being moved to Ward 3. Visiting Hours are 11am – 1pm, 4pm – 8pm. A lot of people have expressed an interest in visiting Karen and I know she will love to see you all, but don’t visit just yet in case she hasn’t been moved to Ward 3. I will post further details ASAP and I expect we will put in place some system to ensure that too many visitors don’t show up at the same time.

Another great day Karen. Some Tears, Some Laughter. But another strong step in the right direction.

dp
(Proud as ever)

When I posted Tuesday’s blog, I omitted a couple of important things, so I am adding this mini-blog and have amended Tuesday’s blog very slightly. There are 2 blog entries for Tuesday, this one should be read AFTER the first Tuesday entry.

The amendment was the visiting hours. Although they are 11am-1pm, 4pm-9pm. I have changed that to read the afternoon visiting finishes at 8pm to allow kp + close family some private time.

Couple of omissions of note. I’ll do the negatives first so I can end on a positive.

Karen’s eyesight is worse than I first realised (because of the stroke). This became clear today when I showed her a photo of herself on the camera. She put the camera all the way upto her right eye. She did this with the Acorn Antiques program also. It was a little upsetting to see. It is her LEFT side that is affected by the stroke, but her right eye can’t see at all. Apparently, (I checked this with a nurse), this is not unusual as there is some crossover in the optic nerves. I confirmed this by blocking each of Karen’s eyes and asking what she could see. She could see nothing when her left eye was blocked.

On the positive side, she CAN still make out things at a distance and closeup (presumably with her good eye). I can stand in the hallway (quite a distance from her bed) and wave when I arrive and she sees me fine and knows its me.

Another bit of a negative is that Karen struggles to remember the nurses names. This in itself is not unusual as there are so many on ICU, but what is a bit more disconcerting is the names she remembers them by. Karen loves having her hair done by a certain nurse, but Karen remembers her as “Split” or “Planet” and she really thinks this is her name. (No doubt these names will soon catch on with the rich and famous, I can see “Split Beckham” and “Planet Cruise” for their next offspring).

One of her nurses for the day had been Wendy, Andrea + another name I have forgot. So, the nurse has been calling kp “Tinkerbell” until she gets it right. She is still “Tinkerbell”

Finally, a lovely positive to end on.

If you have read the blog in the right order, you will know about the Acorn Antiques aspects of the day.

I showed Karen one part of the program that really made me laugh and I knew would get her going. Now its only funny if you know the character Mrs Overall played by Julie Walters. It is a page that is selling the old Acorn Antiques clips on DVD.

Well, I showed this to Karen and I read out the line above (in a poor Mrs O. impersonation), but kp produced the biggest of grins and grabbed her stomach for a little belly laugh.

The day with the Disco Dancing

When I arrived at the hospital today, Karen was extremely perky and very awake. She greeted me in true kp fashion.

kp:- “Good Morning. I have been disco dancing.”

The cd was playing by kp’s bedside and it was playing disco songs from the ’70s.

kp:- “We have been dancing”.

Apparently, the nurses had been making kp laugh by dancing to the 70′s music. kp had been doing the movements with her right hand and moving both her feet in time to the music.

She had a new trick up her sleeve that she was very keen to share with me.

kp (to the physio) :- “Tell David what I can do”
Physio :- “Karen can lift her left leg up.”

Sure enough with the physio guiding kp’s left leg (stroke side), she was making all the effort and the leg was rising under kp’s control.

It was amazing to see a previously dead weight of a leg once again under kp’s control albeit with very limited movement.

Karen has a very bad wound on the back of her head and a couple of scars on the sides. But the wound of the back of the head has required that the nurses cut away a lot of Karen’s hair at the back so that the dressing can protect the wound without coming loose. One of the nurses who Karen refers to as the gaffer, has arranged for kp to have a haircut tomorrow by one of the auxiliaries who is also a qualified hairdresser. kp is REALLY looking forward to that.

The Knickers Fiasco !

Karen had asked me to bring in some of her cotton knickers. Well, I thought all knickers were cotton so picked up a couple of pairs and brought them in. They weren’t cotton, they were probably wool or something ! But the Queen wasn’t happy. So Marie said she would buy her some new all-cotton knickers. So in comes Marie this morning with a 6-pack of knickers. They were all cotton all right !!!! They were also all thong !!! Marie, in her keenness to ensure all cotton had mistakenly got thongs. Not really hospital wear !

kp was amused !! Maybe we’ll crack the knickers situation tomorrow.

As per usual, I read out everyone’s comments from the blog and kp is very grateful for all the comments and texts she receives and specifically asked me to thank everyone. She was particularly amused by Mark’s comments equating Karen’s hard resolve to the hardness of the veggy sausages she cooked for him. If Karen’s resolve is half as hard as those sausages, she will be out of hospital next week !

The move to Ward 3 may happen tomorrow (thursday) – slim chance but possible. Karen is not looking forward to this and is quite anxious about being moved, what with all the new faces and the reduced level of nursing (1 nurse to 12 patients instead of 1 to 1 in ICU).

Marie and Michelle visited this afternoon and all 3 sisters enjoyed a boogie to 70′s music. I managed to get a bit of phone video footage of kp’s boogie action. And yes, that is Karen singing in the background. I used the word “singing” very loosely.

Try this 1st
Try this 2nd
Try this 3rd
Try this 4th
Thanks to Nigel for hosting this segment of video. One of these links should work on your machine. Try from the top down. They are all the same video clip.

kp really enjoyed the light relief.

She then asked for “Over the Rainbow” to be played (the Eva Cassidy version). I had a copy on my phone and played it to her, and within 30 seconds, she was in tears. It’s a beautiful rendition of Over the Rainbow and kp knows I want it played at my funeral. Once kp started, the tears spread, Marie, then Michelle, and I was on tissue duty.

That reminds me that I had kp crying again earlier before Michelle and Marie arrived. I asked kp if she wanted me to read out the blog entry from yesterday (the blog itself). I have done this before and kp cried and I am annoyed that I did it again even though kp said to read it out. We got half way and then it was time for tears and hugs. I will not do it again until she is well down the rehab road.

I do really enjoy some private time with kp. And the close family that can visit at the moment are very understanding of this. Thanks.

We even had some tears from one of the lovely nurses (Dawn) who started crying when she was reading the blog on the computer on the ward. She kindly said that the blog had given her a better understanding of the patient’s and relative’s view of ICU.

I rang kp a few minutes ago to wish her “Good Night”. She was upset because today is Lee’s birthday. Lee was kp’s nephew and he died of leukaemia a couple of years ago (aged 18). Kp ALWAYS visits lee’s gravestone to lay some flowers, but today she couldn’t. I know Marie (Lee’s mam) understands, but kp was understandably upset that Lee wasn’t here and that she couldn’t do her bit.

Let’s end on some highs.

Kp did some more “hold the belly” laughing today. We have some good friends who have a daughter called Megan who is very bright for her age. She is about 2 or 3 (sorry Mark/Tracy). But Mark and Tracy do this little game with her where they say a word such as “Fandooblydom”, and ask Megan what it means. Megan replies “It doesn’t mean anything”, but she says it in such a lovely way that kp and I have always found it very funny.

Well, something came up today (forgot what), and the phrase “it doesn’t mean anything” was a pertinent answer which kp gave in the style of Megan. We laughed, kp laughed holding her stomach.

Another good bit of news!

The consultant Catherine instructed the nurses to switch off all Karen’s monitors, as it was felt she didn’t need to be monitored any more. Yipppeeee ! Vicky made a bit of a ceremony of it, but unfortunately only I could see the symbolism as they are behind kp. But thanks Vicky. It is another step in the right direction.

Karen’s eyesight has deteriorated quite a bit as I mentioned earlier, but she has made up for it tenfold in the hearing department. So, a warning to visitors. If you whisper, it will be heard. Kp can hear a pin drop in the next ward.

Marie has agreed to coordinate visiting. And I know Karen is keen to see as many people who can visit as possible. So, we are going to divide up visiting times into hour slots in the next few days, and people can ring Marie (phone number to be provided over the next day or so) to arrange a time to visit so she is not overtaxed by 10 people by her bed. We will post more details when we know she is on the Stroke Ward (Ward 3).

Thanks again for reading and the messages of support. They really do touch Karen. I don’t know if I have said this before, but she really doesn’t understand why so many people have supported her with texts and blog comments.

She’s a star.

dp

Just had a heart breaking call from kp.

She is in a lot of discomfort and is totally fed up and “wants it all to end”.

She can’t get to sleep, she can’t get comfy and she wants me to sort it all out. I spoke to the nurse and one of the doctors to see if anything else can be done to ease her discomfort.

But she has had the maximum pain relief, the maximum sleeping tablet dosage, they have moved her on every side they can move her and she is still uncomfortable and fed up.

I feel so sorry for her.

One of the doctors assured me that within 90mins the latest tablets should kick in and she should be ok. I reassured her that this was the case, and I think she believed me.

The only other option is sedation, and the more severe pain relief, but this would only slow down her recovery. Battling on is the only real solution.

They are wonderful at ICU and I have no doubt they are doing all they can. I left the phonecall feeling that kp was reassured that it would be ok within an hour or so.

Battle on love. You’re doing so well.

c u 2morrow

dp
xxxxx

This blog will not appear until late tonight or early a.m. as kp wants me back at the hospital to show her how to work the TV/Phone in her new private room on Ward 3.