Some cracking days this week both weather wise and kp mood wise. They coincided with the patches going on (obviously not the weather days).

kp had a really good day in the early week, after going downhill a bit. It was the day after the patch application.

Previous to that, she had been of low mood.

kp:- This is what it’s going to be like, for the rest of my life

Wednesday saw the arrival of Abby, Louisa and mum Adele. We had a good laff with them. Here are Abby and Louisa having the Roast Lamb tea.

Obviously, I reassured her she was still only 5 weeks post op, and things will still improve.

On thursday, I booked her a doctor’s appointment with a view to trying to get the patches sorted. The doctor has kept the strength the same, but changed the type of patch to a different Fentanyl patch. He is hoping that there will be a different release mechanism that may give out the fentanyl for the full 3 days, instead of kp absorbing all in the first 36 hours. Fingers crossed.

Yesterday, Good Friday, with 150ug Fentanyl put on at 4am, I saw a kp that was walking better and feeling top of the world. She wanted to go out shopping for kitchen gear. She loved every minute, although was flagging towards the end, but it still didn’t stop the enjoyment.

With the increased distances in mind, she thought about changing the patch strength. She knows that with the right dosages of Fentantyl, she feels great. So we decided to up it to 175ug (the limit, according to a website we read somewhere). We put the additional 25ug on this morning (7am), so hopefully when she gets up later today (it’s 11am now), she will feel like yesterday. At 7am, she was already not feeling tip top.

So, a patchy week (no pun intended), with some cracking high points.

Tomorrow, I fly off to Cyprus for the week, leaving kp in the care of Marie. I am really looking forward to it, but wish kp could come.