A marginally better day today.

Considering we both slept so much yesterday, we both had really good night’s sleeps.

Today involved a trip to Hunter’s Moor to get kp’s bladder assessed. She had been filling in a “liquids in/liquids out” sheet for the past 4 days and the results were revealed. Apparently, a “normal” person should go no more than 7 times a day, and once in the middle of the night.

kp clocked up 11 times in the day, and 5 times in the night (on the worst day). She had an ultrasound of the bladder to confirm all was ok and basically the upshot of it all is that kp has to retrain her bladder to know when it’s full. Currently, she thinks its full at 150ml, whereas a “normal” person thinks it’s full at about 500ml.

So, she has been given some exercises to help better her 150ml.

Her eyes have been getting on her nerves today. We have an appointment lined up for this at the RVI in Newcastle. This seems to be the number 2 bugbear at the moment, after pain.

kp wasn’t 100% today mentally. She feels she is all alone and noone understands her, no doubt partially to do with my comments from the other day

But, I think the next few days will see improvement. Here’s hoping !